I've started to develop that delicious moonpie face that is a result of taking steroids. The chipmunk has landed.
My skin and joint GvH seem to be getting under control. I find my joints are more flexible and less painful.
The team continues to be concerned about my liver numbers. The trend continues to go up. As a precaution, I've been taken off of one of my antifungals to see if this might be the culprit versus GvHD of the liver. If it does turn out to be the medication, this would be the first time that it's given me problems since I started taking it almost 2 years ago. The team is going to check my numbers on Monday to see if there has been any improvement.
If my numbers continue to trend upward, then I'll have a liver biopsy to confirm GvHD. The next step would be photopheresis to get it under control. It would involve being hooked up to a machine for hours at a time while my cells are circulated out of my body and treated with light therapy, then replaced. That's just a rough description. There's a lot more to it than that.
I'm still getting used to checking my glucose and all of the new meds. The steroids keep me up at night, so sleep has become something of a fantasy. I can manage 2 or 3 hours before I'm wide awake waiting for morning. If I'm really lucky, I can manage a 30 minute nap during the day. I've got a prescription to help me sleep, but it doesn't do much and I don't want to be on anything stronger.
I plan on vegging for the next two days, so things will probably be quiet around here.