I forgot to mention yesterday that I've been running fevers, mostly in the evenings and never over 101 degrees fahrenheit. My pulse has also been giving the team issues. It fluctuates between 110-135 beats per minute. My blood pressure is also elevated to the point that I've been placed on medication to regulate it. Now, keeping in mind that I'm constantly being fed a narcotic, I think that's all that I've forgotten to mention. If I remember something else, I'll be sure to confess to it.
Because of my febrile state, blood cultures have been drawn daily at all hours and I've given multiple urine samples. The urine samples have all come back clean, but yesterday's blood draw showed an infection of some sort. The jury is still out on which particular bacteria is causing it, but the doctors should know something by tomorrow. Unfortunately, I started getting that all too familiar feeling that comes with the onset of a urinary tract infection this morning. I let the team know about it and they dutifully ordered another urine sample. Sadly, I couldn't produce enough of a specimen the first time and had to be asked for yet another later in the day.
I think we'll be able to confirm a UTI tomorrow, but if it looks like a duck and quacks like a duck, then it's probably a duck. Considering that I don't have an effective immune system, I probably look like the buffet on a high end cruise to any and all viruses and bacterias. Yum-yum.
The sores in my mouth have grown and the blisters on the roof of my mouth have started to erupt. The PCA really helps to keep everything under control, but I still haven't been able to eat anything. I got courageous this morning and attempted to drink some cranberry/grape juice. The first sip sent me into a spasm that almost made me cry. Knowing that so many other people have survived this gracefully makes me feel like a whiner, so that's the last that I'll say about the stinky mouth sores.
An occupational therapist popped in for a visit today and based on prior experiences, I only expected the visit to last 15 minutes at the most. I was so very wrong. He insisted that we do 10 reps of 13 exercises. Previous OT's put me through my paces to judge my ability and asked me the usual questions to ascertain what level of self care that I was capable of. This guy didn't really do that. I could tell that he was nervous and I'm sure that was part of the problem.
Based on my ability to complete the assigned exercises, he determined that I should see an OT 3 times a week. When I questioned him about why he felt I needed that level of attention, he didn't have a ready answer. I ticked off the list of things that I was able to do on my own on a daily basis, which included everything. I don't use assisted devices. I can bathe myself. I can feed myself. I'm able to communicate my needs with relative ease. The bottom line of my argument was that he'd be wasting my time. In typical "Ann" fashion I told him as much and he retreated. Now I'll get the occasional visit to assure that I'm still doing well.
Physical therapy is going to be stopping in for an assessment Friday morning. I've worked with this physical therapist in the past and have no worries where she's concerned.
Yesterday was Chris's birthday and I'm really sad that he had to celebrate it as a guest of MDA. On the flip side, I'm so grateful that I got to spend another year with my sweet husband. When this is all over I'll have to think of something really special to do for him. I'm wide open for suggestions.