Chris had an appointment with his bariatric surgeon yesterday. The doctor is pleased with his progress and confirmed that Chris is losing weight at an excellent rate. The doctor elected to inject saline into Chris' port in order to place a greater restriction around his stoma. This will keep Chris from being able to eat too quickly. Chris reported that it was a very big needle and it did hurt when his skin was pierced to access the port. I saw the band-aid and in layman's terms, it was a big ouchie.
Perhaps inspired by all of the Civil War documentaries we've been watching this week, my immune system has elected to attack me on two fronts. The skin GvHD is the worst that it's ever been. There are several rashes occurring on multiple parts of my body. The rashes themselves are the largest they've ever been and occurring on new areas. Don't fret, I'm still one of the lucky ones and my case would still be considered mild compared to others. It's itchy and unsightly, and that's about the worst of it.
My right eye is an attractive shade of pink and both eyes feel itchy and dry. Of course, they aren't physically dry, which is a crafty little trick that GvHD likes to play. They feel mildly strained, making reading a joy. The inside of my right eyelid feels like it's been coated in sand, making each blink an exercise in awareness. Again, I've got it good. I still remember meeting a patient in the apheresis clinic prior to transplant number one getting photopheresis for the GvHD of her eyes. Her eyes were so obscured by mucous, and the skin so pink and swollen, that I couldn't tell you their color. I often wonder how she is.
In summary, to the casual observer, I look like I have eczema, pink eye, and a moderate case of dandruff. Some days, I feel that I should have a shirt made up saying, "It's GvHD, not cooties."