I had my monthly checkup in Houston yesterday and all is well. My blood work was normal for the most part, with the exception of my liver enzymes. Yet again they are elevated. Dr. Kebriaei thinks that this is due to the V-fend that I take and has decided to stop it in favor of Noxafil. She's worried that my liver is irritated due to a number of things, including extra iron from all of the transfusions I've received over the last two years.
In two weeks I'll see my local oncologist for follow up blood work. If my liver enzymes are still elevated then Dr. Kebriaei wants to start me on a new medication that will help eliminate the iron from my liver. She's a little hesitant since I'll be the first transplant patient that she's prescribed this to.
I've also been given the green light to stop testing my blood sugar. After quizzing me about my numbers and the amount of insulin I inject, she decided that maintaining the integrity of my skin was more important. W00t! I still have to follow a diabetic diet, but that shouldn't be a problem. She also wants to be more aggressive about tapering the amount of steroids I take. If all goes well, then I should be completely off of Medrol by the beginning of March. This does mean that I'll start to feel a lot more tired and will probably have more muscle wasting issues. I'll deal with it when it comes.
If anyone needs me, I'll be sitting on the couch recovering from yesterday.