Day 49 (Part 2)
Well it is official, MD Anderson has exhausted Ann's list of Adult Unrelated Donors. After meeting with the transplant Doctor* today she confirmed that MDA has closed the door on finding any additional adult donors. Why? Because of the following reasons: Ann's cancer has a very high chance of relapsing in a more damaging and harder to control form sometime between now and when Ann finishes the Hyper CVAD chemotherapy, and the chance of finding a match in that brief amount of time is so small as to be practically impossible.
MDA is going to use Umbilical Cord Blood (UCB) instead. In fact they are going to use two cord blood units that they have already located (in the New York Blood Center I believe) and are just waiting for the insurance company to release the funds for them to be purchased. They want to use two cords because the issue with cord blood is the number of cells per body mass of the patient. Two cords that are genetically similar can be used to over come this problem and provide the same (or near same) number of stem cells for transplant as an adult donor would.
It also looks like Ann will be pulled off the Hyper CVAD chemo protocol soon. The Doctor expected that Ann would do one more round of Hyper CVAD starting in mid March and then after finishing it would be moved to the transplant protocol. That protocol would be two heavy duty does of chemo, much, much stronger than anything she has done before. I'm not sure if this would be followed by Radiation, but it looks likely. Only after all of this when all of Ann's natural bone marrow is dead will they introduce the new stem cells. No one has given us a time frame yet but the time frame for all this might be sometime as soon as early April.
So we have reached the turning point. Ann's odds are slightly less than the original 50% that the Doctor gave us the first time we met. But considering that with out cord blood Ann would have to depend on only chemo and that has only a 10% for a long term cure with her form of cancer, I think the choice to use a UCB transplant is the best we can do. There are some drawbacks to UCB transplants, mainly a longer time to engraft, and it's a relatively new procedure, but at least we have a little hope for the future.
It is disappointing having all of Ann's original 26 possible adult matches disappear. But thank God we live in a day and age in which we have at least the option of a cord transplant. If this had happened only 5 years ago then I might be saying "good bye" to my beautiful wife and best friend in the world.
Still Asians are underrepresented in the Nation marrow Donor Registry. Mixed Race Asians even more so, and if you are one then please know that there is someone out there that needs your help.
Approximately 10 people die of Acute Leukemia in the United States each day. Many of them for lack of having a viable marrow donor. You can help them. You can be someone's once in a life time miracle. Contact one of the organizations linked on the right side of the page, or the Red Cross and ask them how you can become a marrow donor.
* I forgot to get her permission to use her name in this blog. Got to remember to ask next time.
Wednesday, February 28, 2007
Lights, Camera, Action
DAY 49
Today did not start out well. I woke up with massive amounts of bone pain. Normally, I have bone pain in one or two spots and it is manageable with my pain medications. This morning I had it in my femurs, knees, spine, hips, and ankles all at once. I generally only take one pain pill and maybe twice a day at it's worst. I had to max out on them this morning. I'm feeling better now, but I'm worried since I've resumed my neupogen shots. The neupogen stimulates my marrow, hence, bone pain.
I've been nauseated all day and didn't manage to keep down a banana. In addition to that, I can't keep my temperature up. Chris made me bundle up in bed, which was fine by me, since I feel so rotten. Top it all off with a stomach ache, and it's no school for me.
We have an appointment with the transplant doctor today. I'm pretty sure that we know that I didn't have any BMT matches. I've been reading articles on transplants and cord blood options to get ready. It's hard to decipher the trash from the fact. If you have minority friends, urge them to get HLA typed. It only takes a minute and they only have to do a cheek swab. There are too many people in need and not enough minorities registered. I had no idea that my ethnic background would have such a huge impact on my chances of getting a BMT. It's not one of the things you consider on a day to day basis.
I'll post the results of our visit when we get back this afternoon. Cross your fingers.
Today did not start out well. I woke up with massive amounts of bone pain. Normally, I have bone pain in one or two spots and it is manageable with my pain medications. This morning I had it in my femurs, knees, spine, hips, and ankles all at once. I generally only take one pain pill and maybe twice a day at it's worst. I had to max out on them this morning. I'm feeling better now, but I'm worried since I've resumed my neupogen shots. The neupogen stimulates my marrow, hence, bone pain.
I've been nauseated all day and didn't manage to keep down a banana. In addition to that, I can't keep my temperature up. Chris made me bundle up in bed, which was fine by me, since I feel so rotten. Top it all off with a stomach ache, and it's no school for me.
We have an appointment with the transplant doctor today. I'm pretty sure that we know that I didn't have any BMT matches. I've been reading articles on transplants and cord blood options to get ready. It's hard to decipher the trash from the fact. If you have minority friends, urge them to get HLA typed. It only takes a minute and they only have to do a cheek swab. There are too many people in need and not enough minorities registered. I had no idea that my ethnic background would have such a huge impact on my chances of getting a BMT. It's not one of the things you consider on a day to day basis.
I'll post the results of our visit when we get back this afternoon. Cross your fingers.
Tuesday, February 27, 2007
Approaching the Nexus
Day 48
Sometimes I think the Doctors are getting off easy when we see them. For example we meet with our clinic Doctor today and the long and short of it was "Ann your doing good, and there are no problems and we will see you next time". You have to pinch yourself sometimes to remember that we are here because Ann is being treated for a cancer that could kill her in a matter of weeks.
It seems that Ann is something of a model patient. Apart from some stomach problems, a few aches and pains and the one major side effect to her eyes from the last round, she looks pretty good compared to some of the other patients. Still no infections, fevers or other complications. I guess it's a case of the squeaky wheel getting the grease.
Ann's blood work today looked pretty good. Her platelet count was the most impressive at 434 K/uL (Normal Range 300 - 450). That's the highest it has been since she was diagnosed in Baton Rouge. Her RBC count was 3.50 K/uL (a little low) and the WBC count was 3.6 K/uL (a little low too). Her hemoglobin was a little low as well, but anemia is natural in people with leukemia that have been through some chemo. So in short Ann's blood work looked good today, although the Doctor assures us that the positive numbers will start to disappear as the chemo from round three begin to take affect.
In the picture above Ann is trying to read a three year old magazine while we wait to go in for her 6th Lumbar puncture. Sorry we are running out of "action" shots to take pictures of at MDA.
I'm nervous about tomorrow however. We are scheduled to meet with Ann's transplant Doctor and I'm 100% certain that the main topic of discussion will be the problems finding an adult marrow donor. Based on the speed that MDA is moving through the preliminary donor list I'm sure that they have exhausted the last 4 potential donors that where on the list last week.
Which means tomorrow we will be discussing what other adult donors they might search for, and how long they continue to do it before deciding to use cord blood. For those of you who do not know Ann's cancer is classified as "High Risk" and is expected to relapse anywhere from 2 to 11 months from now. When the cancer relapses it may be drug resistant, which means chemo will be more difficult and less effective than it is being right now. If MDA is going to perform a Bone Marrow Transplant then they have to have an adult donor or donor material in hand sometime in this 2-11 month window of time before relapse.
Cord Blood is also by no means a "slam dunk". The material still has to be genetically matched (although less stringently than an adult donor) to Ann for it to work. And as the people at the stem cell clinic keep reminding me, Ann has a very unique genetic make up due to her Asian and Caucasian parents. Here is to hoping that the Transplant Doctor has something positive to tell us at least.
A nexus is the center or focus of something, the central action or decision that effects everything else that follows. It is the main link that attaches or associates all other actions. The BMT is the critical path or nexus that Ann's sucessful treatment turns on.
I will post more details tomorrow afternoon.
Sometimes I think the Doctors are getting off easy when we see them. For example we meet with our clinic Doctor today and the long and short of it was "Ann your doing good, and there are no problems and we will see you next time". You have to pinch yourself sometimes to remember that we are here because Ann is being treated for a cancer that could kill her in a matter of weeks.It seems that Ann is something of a model patient. Apart from some stomach problems, a few aches and pains and the one major side effect to her eyes from the last round, she looks pretty good compared to some of the other patients. Still no infections, fevers or other complications. I guess it's a case of the squeaky wheel getting the grease.
Ann's blood work today looked pretty good. Her platelet count was the most impressive at 434 K/uL (Normal Range 300 - 450). That's the highest it has been since she was diagnosed in Baton Rouge. Her RBC count was 3.50 K/uL (a little low) and the WBC count was 3.6 K/uL (a little low too). Her hemoglobin was a little low as well, but anemia is natural in people with leukemia that have been through some chemo. So in short Ann's blood work looked good today, although the Doctor assures us that the positive numbers will start to disappear as the chemo from round three begin to take affect.
In the picture above Ann is trying to read a three year old magazine while we wait to go in for her 6th Lumbar puncture. Sorry we are running out of "action" shots to take pictures of at MDA.
I'm nervous about tomorrow however. We are scheduled to meet with Ann's transplant Doctor and I'm 100% certain that the main topic of discussion will be the problems finding an adult marrow donor. Based on the speed that MDA is moving through the preliminary donor list I'm sure that they have exhausted the last 4 potential donors that where on the list last week.
Which means tomorrow we will be discussing what other adult donors they might search for, and how long they continue to do it before deciding to use cord blood. For those of you who do not know Ann's cancer is classified as "High Risk" and is expected to relapse anywhere from 2 to 11 months from now. When the cancer relapses it may be drug resistant, which means chemo will be more difficult and less effective than it is being right now. If MDA is going to perform a Bone Marrow Transplant then they have to have an adult donor or donor material in hand sometime in this 2-11 month window of time before relapse.
Cord Blood is also by no means a "slam dunk". The material still has to be genetically matched (although less stringently than an adult donor) to Ann for it to work. And as the people at the stem cell clinic keep reminding me, Ann has a very unique genetic make up due to her Asian and Caucasian parents. Here is to hoping that the Transplant Doctor has something positive to tell us at least.
A nexus is the center or focus of something, the central action or decision that effects everything else that follows. It is the main link that attaches or associates all other actions. The BMT is the critical path or nexus that Ann's sucessful treatment turns on.
I will post more details tomorrow afternoon.
Monday, February 26, 2007
Better today
Day 47
Okay, I stopped vibrating around the apartment. I feel much better this time around than I did the first time I did this chemo. This isn't saying a whole lot, since I felt so bad the first time. We've figured out that I'm staying hydrated and we think that helps. I still have the shakes, but the numbness in my fingers is getting less noticeable. Maybe I'll finally be able to learn how to knit. Look out, you're all getting wonky scarves for every gift receiving opportunity. I hope you all like yarn. Alot. Seriously.
I discovered that I've developed some psychosomatic symptoms this last time in the hospital. I start to gag when I think of sporanox--you would too if you ever had to take it. I convinced Chris to taste some yesterday and he swears that the aftertaste is still there. I can't swallow pills like I used to. They get caught at the back of my throat and make me gag. This has never been a problem before. I really don't want to have to fight to take my medicine. I know that I need these things to give me the best chance possible to stay healthy. I just can't seem to convince my brain, though.
Okay, I stopped vibrating around the apartment. I feel much better this time around than I did the first time I did this chemo. This isn't saying a whole lot, since I felt so bad the first time. We've figured out that I'm staying hydrated and we think that helps. I still have the shakes, but the numbness in my fingers is getting less noticeable. Maybe I'll finally be able to learn how to knit. Look out, you're all getting wonky scarves for every gift receiving opportunity. I hope you all like yarn. Alot. Seriously.Here's a picture of me leaving the hospital. Notice the barf bucket. I managed to throw up everyday in the hospital. I think it was the accomodations. ;) It did tend to make the nurses nervous. We did figure out that one of the older cheaper nausea IV meds helped more than the $2000 a bag Zofrain. What they charge for medicine is obscene. If you get bored, look up how much my Neupogen shots cost. I could retire to Cuba with a house full of pool boys for what that costs.
I discovered that I've developed some psychosomatic symptoms this last time in the hospital. I start to gag when I think of sporanox--you would too if you ever had to take it. I convinced Chris to taste some yesterday and he swears that the aftertaste is still there. I can't swallow pills like I used to. They get caught at the back of my throat and make me gag. This has never been a problem before. I really don't want to have to fight to take my medicine. I know that I need these things to give me the best chance possible to stay healthy. I just can't seem to convince my brain, though. The above picture is of all the meds I have to take each day.
Another weird side effect, or what have you, is that I constantly crave red meat. I can't have a medium rare steak like I would love, but I can have roast beef sandwiches. I constantly want them. I wonder if it has anything to do with my low red blood cell counts. It makes an interesting argument for vampirism. When this is all done and I am well, I am going to eat the biggest steak that I can lay my hands on. No stinking vegetables, just meat, baby and maybe some butter. We'll see.
The tangy feeling is back. Prevention mouthwash helps a lot. I will forever be grateful to Heather for sending that one over. There's nothing like trying to eat when lemonhead warfare is going off in your mouth.
I finally got my Luperon shot. Menopause here I come. That's the funny thing about cancer. Your body goes through so many physical changes. You get the loss of muscle tone and chicken legs topped off by a mostly rounded doughy paunch to punctuate you're skinny butt. Add induced menopause and it's a Victoria's Secret swimsuit layout for the ages. I won't let this stop me from donning a bikini when Chris and I skip the country to avoid paying our medical bills. St. Croix, here we come.
Another weird side effect, or what have you, is that I constantly crave red meat. I can't have a medium rare steak like I would love, but I can have roast beef sandwiches. I constantly want them. I wonder if it has anything to do with my low red blood cell counts. It makes an interesting argument for vampirism. When this is all done and I am well, I am going to eat the biggest steak that I can lay my hands on. No stinking vegetables, just meat, baby and maybe some butter. We'll see.
The tangy feeling is back. Prevention mouthwash helps a lot. I will forever be grateful to Heather for sending that one over. There's nothing like trying to eat when lemonhead warfare is going off in your mouth.
I finally got my Luperon shot. Menopause here I come. That's the funny thing about cancer. Your body goes through so many physical changes. You get the loss of muscle tone and chicken legs topped off by a mostly rounded doughy paunch to punctuate you're skinny butt. Add induced menopause and it's a Victoria's Secret swimsuit layout for the ages. I won't let this stop me from donning a bikini when Chris and I skip the country to avoid paying our medical bills. St. Croix, here we come.
That's enough rambling for me.
Sunday, February 25, 2007
Free again
Day 46
I'm out and back at the apartment driving Chris crazy. The steroids from this last round of chemo make me feel like I'm vibrating. I can't sleep and I can't sit still even though I'd like nothing more than to crash. Chris said that I had the same problem the last time I came out, but I can't remember.
No appointments tomorrow, but I do have a lumbar puncture on Tuesday, as well as an appointment with Dr. Thomas. We forgot to pick up my blood test results from the hospital today, so Chris has me on frozen dinners until he knows what my counts are. I cannot recommend the pork riblet dinner with potatoes and corn. It might have been pork, it may have been possum. I couldn't say.
I'm too jittery to type anything else, so I'll have to leave the rest up to Chris when he gets back from laundry duty. Sorry this post was so crazy.
I'm out and back at the apartment driving Chris crazy. The steroids from this last round of chemo make me feel like I'm vibrating. I can't sleep and I can't sit still even though I'd like nothing more than to crash. Chris said that I had the same problem the last time I came out, but I can't remember.
No appointments tomorrow, but I do have a lumbar puncture on Tuesday, as well as an appointment with Dr. Thomas. We forgot to pick up my blood test results from the hospital today, so Chris has me on frozen dinners until he knows what my counts are. I cannot recommend the pork riblet dinner with potatoes and corn. It might have been pork, it may have been possum. I couldn't say.
I'm too jittery to type anything else, so I'll have to leave the rest up to Chris when he gets back from laundry duty. Sorry this post was so crazy.
Saturday, February 24, 2007
Round Three Almost Over
2/24/07 Day 45
We are almost at the end of round three, Ann is on her last bag of chemo (a 24 hour drip) and we are scheduled to take her home sometime tomorrow afternoon. This round of chemo is the same set of drugs that Ann got on the very first night that she arrived at MDA. However the effect they are having on her is much more pronounced than the first time.
Ann's theory is that when she came into the hospital the 1st time she was already hyper-leukemic, and felt horrible. So any treatment was going to make her feel better. However since she has already had some chemo and was feeling "better" the reintroduction of the chemo drugs have just made her feel bad again which should clear up as the chemo leaves her system.
The main thing that is troubling her with this round of chemo is the nausea. It comes over her like clock work at around 9:00 pm and stays with her until the nursing staff gives her something for it through her IV or she throws up, which ever comes 1st. Usually the IV drugs have to be already hooked up and going into her an hour or two before she feels the first on set or are useless.
The last drug they are giving her today is Doxorubicin and it is used to damage the process of DNA replication when cells divide. It has a strange red color that makes it look exactly like brake fluid. It's side effects can include nausea, vomiting, heart arrhymeas, congestive heart failure and later in life cardiomyopathy. Lovely. Still in the log run it's preferable to cancer. Doxorubicin is currently being used experimentally to treat AIDS patients because it seems to have the same DNA damaging effect on HIV infected cells as it does on leukemia cells.
For those of you who are interested I have included a shot of Ann's IV tree and pumps. The Doxorubicin is the red stuff on the right. The other bags are saline, or anti-nausea, drugs. When she goes in to the hospital this is typically the number of bags that are hooked up to her and she has to be very careful moving around because they are all attached to the small CVC in her chest. That's only held in place by three stitches and could be pulled out pretty easily if she fell or rolled over in her sleep.
We are still waiting to here more news about the transplant. At this point I belive that MDA is most likely going to conclude the Adult Donor search and begin to focus on Cord Blood based on the risk of Ann's leukemia. I asked one of the Doctors and he said he believed that they might do the opposite, and continue the Hyper CVAD treatments until they are finished and then go to a transplant. That way they have 5 more months to search for a donor.
I have also contacted the AADP and A3M organizations in California and given them Ann's Uncle Loi's number so they can coordinate with Ann's family to help register more Asian marrow donors. The chances that they will find a donor for Ann is small but they might help someone else who is just as sick. Ann's friend Tina mentioned that there might be similar organizations in NYC and we might be able to reach out to them too.
Considering the expense of MDA and the Donor search, 5 more months could eat up all of our insurance. So I am starting to take steps now to try to avoid us having to make treatment decisions based on what we can and can't afford. The first is I applied of Louisiana Medicaid (more on this later), the second is I asked out existing insurance company to extend out coverage cap in exchange for a higher premium (no word on that yet, but I'm not holding my breath) and finally I have begun to look into non-profit fund raising.
Dealing with Louisiana Medicaid is infuriating! They actually told me that because we elected to come to MDA that they would not help us, because MDA is Texas not Louisiana. She also suggested that if I was in financial trouble that I could take Ann to Earl K. Long (Charity Hospital in Baton Rouge) and let them do the chemo and BMT! Earl Long has no record of treating leukemia or doing BMTs...incredible. The sad thing was that the woman I was speaking to was dead serious about us going there. I have never been ashamed to be a resident of Louisiana until now, and I can honestly say that me and Ann will have to think long and hard about be going back when this is all over.
I hope to have a web cam for Ann's laptop so that when she goes into the hospital for the next round, in about 2 weeks, then everyone can log in and talk to her on the Internet.
We are almost at the end of round three, Ann is on her last bag of chemo (a 24 hour drip) and we are scheduled to take her home sometime tomorrow afternoon. This round of chemo is the same set of drugs that Ann got on the very first night that she arrived at MDA. However the effect they are having on her is much more pronounced than the first time.Ann's theory is that when she came into the hospital the 1st time she was already hyper-leukemic, and felt horrible. So any treatment was going to make her feel better. However since she has already had some chemo and was feeling "better" the reintroduction of the chemo drugs have just made her feel bad again which should clear up as the chemo leaves her system.
The main thing that is troubling her with this round of chemo is the nausea. It comes over her like clock work at around 9:00 pm and stays with her until the nursing staff gives her something for it through her IV or she throws up, which ever comes 1st. Usually the IV drugs have to be already hooked up and going into her an hour or two before she feels the first on set or are useless.The last drug they are giving her today is Doxorubicin and it is used to damage the process of DNA replication when cells divide. It has a strange red color that makes it look exactly like brake fluid. It's side effects can include nausea, vomiting, heart arrhymeas, congestive heart failure and later in life cardiomyopathy. Lovely. Still in the log run it's preferable to cancer. Doxorubicin is currently being used experimentally to treat AIDS patients because it seems to have the same DNA damaging effect on HIV infected cells as it does on leukemia cells.
For those of you who are interested I have included a shot of Ann's IV tree and pumps. The Doxorubicin is the red stuff on the right. The other bags are saline, or anti-nausea, drugs. When she goes in to the hospital this is typically the number of bags that are hooked up to her and she has to be very careful moving around because they are all attached to the small CVC in her chest. That's only held in place by three stitches and could be pulled out pretty easily if she fell or rolled over in her sleep.We are still waiting to here more news about the transplant. At this point I belive that MDA is most likely going to conclude the Adult Donor search and begin to focus on Cord Blood based on the risk of Ann's leukemia. I asked one of the Doctors and he said he believed that they might do the opposite, and continue the Hyper CVAD treatments until they are finished and then go to a transplant. That way they have 5 more months to search for a donor.
I have also contacted the AADP and A3M organizations in California and given them Ann's Uncle Loi's number so they can coordinate with Ann's family to help register more Asian marrow donors. The chances that they will find a donor for Ann is small but they might help someone else who is just as sick. Ann's friend Tina mentioned that there might be similar organizations in NYC and we might be able to reach out to them too.
Considering the expense of MDA and the Donor search, 5 more months could eat up all of our insurance. So I am starting to take steps now to try to avoid us having to make treatment decisions based on what we can and can't afford. The first is I applied of Louisiana Medicaid (more on this later), the second is I asked out existing insurance company to extend out coverage cap in exchange for a higher premium (no word on that yet, but I'm not holding my breath) and finally I have begun to look into non-profit fund raising.
Dealing with Louisiana Medicaid is infuriating! They actually told me that because we elected to come to MDA that they would not help us, because MDA is Texas not Louisiana. She also suggested that if I was in financial trouble that I could take Ann to Earl K. Long (Charity Hospital in Baton Rouge) and let them do the chemo and BMT! Earl Long has no record of treating leukemia or doing BMTs...incredible. The sad thing was that the woman I was speaking to was dead serious about us going there. I have never been ashamed to be a resident of Louisiana until now, and I can honestly say that me and Ann will have to think long and hard about be going back when this is all over.
I hope to have a web cam for Ann's laptop so that when she goes into the hospital for the next round, in about 2 weeks, then everyone can log in and talk to her on the Internet.
Friday, February 23, 2007
Rotten day
2/23/07 Day 44
Well, I am definitely sick. We should get the test results of the nasal wash tomorrow, but I can tell you that I am ill. The signs are all there--sneezing, congestion, green mucous.
I'm back on Lasix today because it seems that I am retaining fluid. The staff is concerned that it will settle in my lungs and that would be very bad. I have to record how much liquid I take in and how much I eliminate every day. I managed to take in three liters of liquid yesterday, but I didn't put out nearly enough to compensate for it, which triggered the alarm bells. The day before that I took in 2 liters and the day before it was one liter. One liter is pretty normal for a healthy adult. I'm just an over achiever all around.
My Luperon shot should be coming today. We're taking bets on where they'll want to inject it. I'm holding out for the fattest part of me. Chris thinks it will be in the arm. Not my favorite place to get a shot. Cross your fingers and say a prayer that this will help in the long run.
I'm still throwing up, so the doctor is changing my nausea medicine. I hope it works. I've been vomiting like clock work at the same time everyday. I've lost the three pounds that I put on last week. I am still making myself eat, and Chris and the nursing staff are making sure that I'm eating most of what I order. The food service team even checks to see how much I've eaten. Like I've said before, everyone here is really great. I've only met two people who should be in a different line of business. Lucky for me, I haven't had to deal with them since the first time.
Sorry this post couldn't be more positive. The doctor says that I should be getting out on Sunday. I can't wait! I hope to have better news to post next time.
Well, I am definitely sick. We should get the test results of the nasal wash tomorrow, but I can tell you that I am ill. The signs are all there--sneezing, congestion, green mucous.
I'm back on Lasix today because it seems that I am retaining fluid. The staff is concerned that it will settle in my lungs and that would be very bad. I have to record how much liquid I take in and how much I eliminate every day. I managed to take in three liters of liquid yesterday, but I didn't put out nearly enough to compensate for it, which triggered the alarm bells. The day before that I took in 2 liters and the day before it was one liter. One liter is pretty normal for a healthy adult. I'm just an over achiever all around.
My Luperon shot should be coming today. We're taking bets on where they'll want to inject it. I'm holding out for the fattest part of me. Chris thinks it will be in the arm. Not my favorite place to get a shot. Cross your fingers and say a prayer that this will help in the long run.
I'm still throwing up, so the doctor is changing my nausea medicine. I hope it works. I've been vomiting like clock work at the same time everyday. I've lost the three pounds that I put on last week. I am still making myself eat, and Chris and the nursing staff are making sure that I'm eating most of what I order. The food service team even checks to see how much I've eaten. Like I've said before, everyone here is really great. I've only met two people who should be in a different line of business. Lucky for me, I haven't had to deal with them since the first time.
Sorry this post couldn't be more positive. The doctor says that I should be getting out on Sunday. I can't wait! I hope to have better news to post next time.
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